June 21st...

So Andrew had a great night last night. They weaned him off his Phentinol (sp?) for pain. He is now only taking tylenol and Valum (Sp?) for the muscle spasms. He seems much more comfortable today than yesterday. It's so hard to believe how fast kids bounce back. He has his urination back and is doing great with that, which is awesome since he could have developed incontinece after surgery! So we are happy with that. He is fighting us every step of the way to get out of bed! He was brought up to the 12th floor neurology unit last night and is much more comfortable there than the PICU. He is able to be inclined to 30 degrees in bed which helps him be a bit more comfortable, but for him it's not enough. He ate many popsicles last night and started breakfast this morning. Daddy asked him if he wanted bacon & eggs, cereal, oatmeal, fruit, or a bagel and he said "Yes"! lol. So they just brought everything and he ate really well! He actually had 2 bowls of cereal before lunch even though we told him lunch was on the way. He ate his soup, pineapples, yogurt and juice and loved it! Matthew was able to come and spend time in his room. They were so cute together, like they had been apart forever! Andrew cried when Grandma wanted to bring Matthew to the rooftop garden. They were having a clown parade and a horticulture therapy event. Matthew got to plant flowers and plants and painted a flower pot for Andrew with a plant in it.

So, Dr. Park came to visit this morning and was VERY pleased with Andrew's movement and motivation to get out of bed. He said most children are in a bit more uncomfortable and usually Andrew is not well with pain... So that sounds good. He will be able to get out of bed in the morning and will start his first Therapy session at 9:30am and again at 1:30pm.

He is much more comfortable today and more alert not being on the pain medicine, but still a bit sleepy. He slept really well last night until 5am when I tried to help him pee and forgot to take the cover off the urinal and soaked him! Poor kid... Dumb Mommy! so we had to get him changed and then he was up for the morning.

Here is a link to some more photos from today on the Kodak Easy share website... if you have trouble let us know. http://www.kodakgallery.com/I.jsp?c=uhdvt31.1ojwlh2d&x=1&y=-cv3qag

We'll post more tomorrow. Hope you are all enjoying this blog. It's so much easier to update from here. If you know anyone that wants it, forward it to them please.

And thank you all again for the "get well wishes" for Andrew. It has really cheered him up!