Having Fun At The Beach

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Hello all...

It has been a while... I plan to post a video tonight of Andrew's Walking. He is doing well since he started Aquatherapy. He is getting frustrated with the therapist since she is trying to get him comfortable on his back in the water since she plans to do lots of exercises on his back. But in his mind he thinks that it is play time. So we have some plans to spice things up a bit for him at his next session. It has been really difficult lately to see him back on his toes again. It is the constant reminding him to put his feet heel to toe. and of course he is frustrated with us by telling him all of the time also. But it seems that fatigue sets in in the afternoon and of course he is not really motivated first thing in the morning. So when we see him the most on weekdays (morning and evening) because he is at school all day, it seems like that he is having a setback, but in actuality we see a difference on the weekend when he is with us all day.

Otherwise he is doing well. We notice that he is much stronger and has better balance and things get better little by little every day. Of course, since his IS doing more strenuous activities during the day, he seems to get really tired in the evenings.... BUT it doesnt help that he just lays in bed and doesnt fall right off to sleep. He rests for a long time before dozing off.

Here are some pictures of the boys at the beach and I'll post more photos and video later.

7 and a half weeks....

Well, we are past the 6 week mark and Andrew is doing great. He's been getting a little mad a people for telling him to walk heel to toe, but we keep telling him that if he would just do it on his own, that everyone will stop telling him to. Even the 3-5 yr old children at school are telling him also. Kids that age are so cute when they like to participate in people's care.

So Andrew started his first Aquatic Therapy session last week but did not get into the pool yet. Today they will put him in the pool and we'll see how it goes. His new therapist there would love to see him 2x a week, but we only have 13 visits left under our insurance. After the 13 we will have to pay out of pocket. So we may try to stretch it out until we go back to St. Louis Children's in October and then go from there. We're trying to find a way to get the insurance company to cover more but it is pretty much set in stone. So we're looking for a way around that.

We celebrated Matthew's 3rd birthday this weekend and the boys had a BLAST. Our back yard was basically a fun park. We had a HUGE bounce house, big blow up waterslide, a blow up pool under the playset slide, the playset of course, and another kiddie pool, balloons, games and of course, cake and ice cream. There were about 35-40 people there and about 18 of them were kids under 5!! WOW what a party. Needless to say, the boys zonked out by 7:00. Andrew did REALLY well in the bounce house. I would love it if we could afford to get him something like that for therapy and also for Matthew to burn off some energy!! lol. It's funny to want one child to burn off energy and another to gain some energy and strength!! It's like one extreme to the next.

But anyway, we're hoping the Aquatic Therapy will help with Andrew's sensory issues also since he's developed some different sensory issues in the past 6 months or so. Some seem to have gotten better, while others seem to have cropped up and are unbearable. I'll post more about that later and see if anyone has any suggestions for us.

Well, it's time for me to go pick up Andrew for his 4:00 therapy. Hopefully I can post some photos again soon.